INSD Cookie Policy

Our website neonatalscreeningday.org uses  cookies to ensure the optimised functioning of the website, to distinguish you from other users of our website, and to assess how you interact with the website. This helps us provide you with a good experience when you browse our website and also allows us to improve our site. 

This cookie policy provides you with clear and comprehensive information about the cookies we use and the purposes for using them. 

The International Neonatal Screening Day (INSD) is an initiative of the International Society for Neonatal Screening (ISNS), the International Patient Organisation for Primary Immunodeficiencies (IPOPI), and the European Society for Immunodeficiencies (ESID), which have been working in partnership under the multi-stakeholder Screen4Rare (hereinafter “S4R”) platform to promote the importance of neonatal (newborn) screening. This multi-stakeholder initiative is responsible for the processing of your personal data as described in this cookie policy. IPOPI, ISNS, and ESID will each act as a controller for the processing of your personal data.

This cookie policy applies to the following website of S4R, the International Neonatal Screening Day website: [www.neonatalscreeningday.org] (hereinafter “our Website“).

It is important to read this cookie policy carefully. If you have any further questions, please do not hesitate to contact IPOPI as your point of contact by letter at Avenue Louise/Louizalaan 367 BE-1050 Brussels, Belgium by e-mail to info@ipopi.org. 

For more information about the processing of your personal data, please refer to our privacy policy.

A cookie is a small file of letters and numbers that we store on your browser or the hard drive of your computer. Unless you have adjusted your browser setting so that it will refuse cookies, our system will issue cookies as soon as you visit our site.

First and third-party cookies: whether a cookie is ‘first’ or ‘third’ party refers to the domain placing the cookie. First-party cookies are those set by a website that is being visited by the user at the time (e.g. cookies placed by www.neonatalscreeningday.org.)

Third-party cookies are cookies that are set by a domain other than that of the website being visited by the user. If a user visits a website and another entity sets a cookie through that website, this would be a third-party cookie. 

Persistent cookies: these cookies remain on a user’s device for the period of time specified in the cookie. They are activated each time that the user visits the website that created that particular cookie. 

Session cookies: these cookies allow website operators to link the actions of a user during a browser session. A browser session starts when a user opens the browser window and finishes when they close the browser window. Session cookies are created temporarily. Once you close the browser, all session cookies are deleted.

A full list of the specific cookies we use on our Website is added below. To go to the full list of cookies, click here.

You can delete or deactivate cookies from our Website at any time, either via your web browser settings or on the websites of the various third parties that install cookies. 

If you are using different computers, smartphones and/or tablets, please remember to set your cookie preferences on each of those devices.

Except for strictly necessary cookies, you can manage cookie preferences at any time via the cookie banner.

a) via your web browser

Most browsers are initially set up to automatically accept cookies. You can also change the settings to block cookies or to alert you when cookies are being sent to your device.

It is easy to manage cookies. Click on one of the links below to go directly to your browser manual.  

– Cookie settings in Internet Explorer 

– Cookie settings in Firefox 

– Cookie settings in Chrome 

– Cookie settings in Safari 

– Cookie settings in Microsoft Edge

Please note that we have no control over the content of the above-mentioned pages. These links can be changed by the owners of the respective browsers.

b)  Third-party cookies

During your visit to our Website, in addition to the cookies installed by S4R on the INSD website, cookies may also be installed by third parties. Below you will find the links to the websites of these third parties, which sometimes also install cookies. There you will find more information about these third parties, their privacy policies and you may be able to choose not to accept their cookies (if possible). We have no control over the location and content of the pages of these third parties. 

– Google Analytics: privacy policy and cookie settings. 

– Twitter: privacy policy and information on twitter advertising.

We do our best to keep the list of third parties that may install cookies when visiting our Website up to date. However, we cannot guarantee that the list of third parties will be complete at all times.